Empowering Communities, Changing Lives.

Our mission is to spread awareness about rare genetic conditions impairing brain development and neurological development in children, advocate for the causes, drive research into the disorders, and seek therapeutic interventions. We are here to support families through fundraising events, online support groups, webinars, and by providing resources. We believe in the power of community and aim to be the voice for those who need it the most.

Our foundation is guided by a dedicated Board of Directors, including Alex, our President, Ryan Honick, our Treasurer, and Cheralee Kemp, our Secretary. We are also supported by a brilliant Scientific Advisory Board, consisting of renowned experts like Associate Professor Wendy Gold and Dr. Henry Houlden, who are committed to advancing research in rare genetic disorders.

We are a volunteer-run organization, maximizing our donors' contributions towards our goal of funding research for rare brain and neurodevelopmental disorders.  We are working tirelessly to support research for many conditions, aiming towards finding a cure. We have obtained  501(c)(3) status in New Jersey, ensuring transparency and integrity in our financial operations. Check out our financials for more details.

We invite you to join us in our mission to make a difference in the lives of children with rare genetic brain and neurodevelopmental disorders. Whether it's by donating, participating in our events, or simply spreading the word, your support is invaluable. Let's work together to bring hope, support, and a brighter future to these children and their families. Dive into the testimonials from our professional collaborators and see the impact we’re making together!

We are more than just a foundation; we are a family united by love, hope, and a common goal. Alex’s journey, her story, and her unwavering spirit are the driving forces behind our foundation. We believe in the strength of unity, the power of knowledge, and the magic of compassion. So, come along, be a part of our journey, and let’s create a world full of possibilities and smiles for our little warriors!